Chromosomes & Chaos
Welcome to Chromosomes & Chaos, hosted by Patty and Amber, two moms from Iowa navigating life with kids who have Down syndrome! This podcast is a mix of laughter, honesty, and heart.We share our personal stories, different viewpoints, and the triumphs (and messes!) of raising multiple kids in a busy world. From therapies to school, doctor visits to dance parties, and everything in between, no topic is off-limits.Whether you’re a parent, sibling, family member, friend, or advocate, Chromosomes & Chaos is a space for connection, awareness, and community. Join us each week to celebrate life, share experiences, and remind ea...
Hard Goodbyes & Big Gratitude
This episode is a heartfelt one. 💙 We’re saying goodbye to two incredible people who have made such a huge impact on Pierce and Addi—our amazing para and special education teacher. Letting them go is not easy, and we talk about just how much they’ve meant to our families.
We also chat about our summer plans, take time to remember sweet Hudson and the lasting impact he has had on our hearts, and of course, wrap things up with a little Chaos Corner. 🤪
We hope your summer is off to a great start...
The National Holiday That Doesn't Exist (But Should)
🎙️ NEW EPISODE: Chromosomes & Chaos 🎙️
Okay, hear us out...
There’s a National Donut Day.
There’s a National Pizza Day.
There’s even a National Talk Like a Pirate Day. 🏴☠️
But there isn't a National Special Needs Day?!
This week, we're talking about why we think there should be one and what it would look like if we got to create it. Would there be parades? Free coffee for therapy parents? Spa days?
We share our ideas, our experiences, and why celebrating individuals with disabilities and special needs deserves more than j...
“Nobody Prepared Us for This”: Raising Jacob After His Down Syndrome Diagnosis
Welcome back to Chromosomes & Chaos — the podcast where we keep it real about parenting, diagnoses, advocacy, and the beautiful chaos in between.
In this episode, we sit down with Leanne to talk about her 9-year-old son, Jacob, and the journey of navigating life after receiving a diagnosis. From potty training struggles and school experiences to the day-to-day realities most people don’t see, Leanne shares the raw, honest moments of raising a child with different needs.
This conversation dives into the highs, the hard days, the wins that deserve celebrating, and the lessons learned along the...
Our Special Needs Life: We Are Done Explaining!!
There’s a layer of life that not everyone sees—the constant questions, the stares, the assumptions, the need people feel to understand… or worse, to judge.
In this episode of Chromosomes & Chaos, we’re saying it clearly: WE ARE DONE EXPLAINING.
Done explaining our child.
Done explaining our parenting.
Done explaining why things look different, feel different, or are different.
When you’re raising a child with Down syndrome or special needs, it can feel like the world expects a running commentary—why they act a certain way, why you parent the w...
We’re Taking the Summer Off… Supposedly 👀
Summer is here… and apparently we’re “taking the summer off.” But are we really? And more importantly… does anyone actually believe Patty can do that? 😅
In this episode of Chromosomes & Chaos, we’re talking all things summer—slower schedules (maybe), shifting routines, family chaos, trying to be intentional, and the pressure to make summer magical while somehow also surviving it.
We’re diving into:
☀️ What “taking the summer off” even means for us
😂 Why Patty relaxing may be the biggest plot twist of the year
⚾ Summer with kids, sports, camps, and controlled chaos
💭...
Haters, CPAPs & Youth Sports Chaos: Building Thick Skin in a Loud World
Welcome back to Chromosomes & Chaos—where real life gets loud, unfiltered, and a little messy (just how we like it).
This episode hits on something EVERYONE deals with but no one really prepares you for… online trolls and negative comments. From keyboard warriors to unsolicited opinions, we’re breaking down how we handle it, what it actually feels like behind the scenes, and how we’ve learned to not let it derail us.
But it wouldn’t be Chromosomes & Chaos without a few curveballs…
We’re also diving into:
💤 The real-life adjustme...
The Truth About Confidence (No One Tells You This)
CONFIDENCE.
Not the kind you’re born with…
The kind you build.
In this episode of Chromosomes & Chaos, we’re diving into what it really takes to have the confidence to go after what you want in life—
✔️ Raising a child with Down syndrome
✔️ Starting something new (like this podcast)
✔️ Showing up for your workouts
✔️ Becoming the person you know you’re capable of
Because here’s the truth…
Confidence isn’t something you wait for.
It’s something you create through action.
We’re also sharin...
If Your Child Elopes, You NEED to Hear This!!!!!
On our newest episode of Chromosomes & Chaos, we’re diving into a topic that so many families understand all too well—eloping.
We’re sharing real-life experiences with our kiddos, along with the safety tips, strategies, and lessons we’ve learned over the years to keep them safe while still giving them the freedom to explore.
If you’ve ever felt that moment of panic or are looking for ways to be more prepared… this episode is for you.
✨ Chromosomes & Chaos is all about the real, unfiltered journey of raising kids with different needs—celebrat...
After the Diagnosis: Real Talk About Teens with Down Syndrome
“If you’ve ever wondered what the teenage years REALLY look like after a diagnosis… this is the episode.”
If this is your first time here—welcome to Chromosomes & Chaos 💛
This podcast is about real stories from 2 moms who have kids with Down Syndrome navigating life’s highs, lows, and everything in between—from parenting and purpose to adversity, fitness, and finding strength in the chaos.
It’s raw. It’s honest. And it’s badass.
This week, we sit down with Bonnie—mom to 14-year-old Aiden—and NOTHING is off the table.
We’re t...
WEAR BLUE & YELLOW 💛💙 | 3.21 Is Coming!!!!!
We’re giving you a Gala Update + getting READY for Down Syndrome Awareness Day (3.21)
👉 Wear your BLUE & YELLOW
👉 Show up
👉 Spread awareness
👉 Celebrate the extra chromosome that makes the world better
If you’re new here—
Chromosomes & Chaos is a podcast about real life, real stories, and real perspective. We talk about parenting, purpose, resilience, and what it means to find strength in the middle of the unexpected. It’s raw, it’s honest, and it will make you feel something.
This episode hits on:
💛 What’s coming with the Gala
💛 Why thi...
Sober on St. Patty’s Day?! 13 Years Strong!!!!
🍀 NEW EPISODE: Chromosomes & Chaos 🍀
St. Patty’s Day looks different for everyone… and today, we’re celebrating something WAY bigger than green beer.
🎉 Patty is celebrating 13 YEARS SOBER 🎉
Let that sink in. 13 years of choosing strength. 13 years of choosing better. 13 years of showing what’s possible.
This episode is a powerful reminder that you can still celebrate, have fun, and live FULLY—without losing yourself in the process.
Whether you’re going out today or staying in…
👉 Make smart decisions
👉 Take care of your people
👉 And remember what really matters
If thi...
5,000 Strong: How a Diagnosis Built Mental Toughness + A Podcast
🎉 5,000 DOWNLOADS… WHAT?! 🎉
We are celebrating a HUGE milestone today — 5,000 downloads of Chromosomes & Chaos.
Seriously… thank you. Every listen, every share, every message — it means more than you know. What started as a way to process our story has turned into a growing community that reminds us we’re not alone in the chaos. 💛
In this episode, we reflect on how a diagnosis we once feared has actually built the mental strength we now lean on daily. What felt overwhelming at first has shaped our perspective, deepened our gratitude, and prepared us to hand...
From Fear to Fierce Love: Mallory & Marty’s Story
In this episode of Chromosomes & Chaos, we sit down with Mallory (AKA Mart's Mom) and her 4-month-old son, Marty, for a conversation that will move you, stretch you, and remind you what really matters.
From receiving a birth diagnosis…
To navigating a scary pregnancy…
To an unexpected NICU stay no parent ever feels ready for…
Mallory shares their journey with honesty, vulnerability, and unwavering faith.
What started with fear transformed into fierce love.
Uncertainty turned into gratitude.
And perspective shifted in ways they never could have imagined.
This episo...
A Down Syndrome Story: From Living On His Own To Being The Top Powerlifter In Iowa
Twenty-eight years ago, Bonnie received a diagnosis that changed everything.
She was scared. Unsure of the future. Unsure of how the world would see her son—or her family.
Today, Issac is thriving.
In this episode of Chromosomes & Chaos, Bonnie and her son Isaac sit down to share their journey—from fear and uncertainty to confidence, independence, and strength. Isaac lives on his own and is now one of the top three powerlifters in the state of Iowa, redefining what’s possible every single day.
This is a convers...
Sickness, Surgery & Starting Over: February, We’re Ready!!!!
January tested us.
Sickness.
Surgeries.
Schedules blown up.
Plans derailed.
And honestly? Survival mode was the win.
But February?
February is a reset.
Not a “new year, new you” kind of reset…
A grace-filled, meet-yourself-where-you-are reset.
On this episode of Chromosomes & Chaos, a podcast about real life parenting, advocacy, fitness, and navigating the beautiful chaos that comes with raising kids with Down syndrome (and everything else life throws at you), we’re talking about:
• Letting go of January guilt
• Navigating sickness & surgery without losi...
Sending Kids with Down Syndrome to College: The Ruby Rainbow Mission
In this episode, we sit down with Liz from Ruby Rainbow, an incredible nonprofit on a mission to send individuals with Down syndrome to college—because higher education should be accessible to everyone.
We talk about breaking outdated expectations, why post-secondary education matters for individuals with Down syndrome, and how Ruby Rainbow is creating real opportunities through college scholarships and advocacy. Liz shares the heart behind the mission, the impact these scholarships have on students and families, and why belief and access can change the trajectory of a life.
We also di...
Talking to Kids About Disabilities & Differences
In this episode of Chromosomes & Chaos, we dive into a question every parent faces sooner or later:
What do you say when your child notices — and asks about — disabilities and differences?
Kids are curious, observant, and honest… sometimes uncomfortably so. And too often, parents freeze, shush, or say “don’t stare” without knowing what to say next.
We talk about why these questions are normal, how our reactions shape our children’s understanding of disability, and how to respond with honesty, respect, and confidence. From simple language to real-life scripts, we explore how to...
Down Syndrome: Unlearning the Narrative
On this episode, we talk about the things we had to unlearn after having a child with an extra chromosome.
We had to unlearn timelines and expectations.
Unlearn comparison, control, and the idea that “normal” is the goal.
Unlearn the fear-based narratives and limits that were placed on our child before they ever had the chance to show us who they are.
This episode is about releasing what we thought parenting was supposed to look like—and embracing patience over pressure, progress over pace, and connection over checklists.
And i...
New Year's Resolutions: Are We In or Out?!?!!?
In this episode of Chromosomes & Chaos, we’re diving headfirst into the chaos of the New Year. Are New Year’s resolutions actually helpful… or are we officially over them? 👀
We talk about the pressure to “start fresh,” what really works when it comes to goals, and how to approach the New Year without burning out by January. Spoiler alert: it’s not about perfection.
Plus, we wrap it up with our Christmas & Chaos Corner—the good, the messy, the emotional, and everything in between that the holidays bring.
If you’re feeling hopeful...
Merry, Messy & Real: Navigating the Chaos of the Holidays
The holidays are here—and so is the chaos 🎄😅 In this episode of Chromosomes & Chaos, we’re leaning into the fun, the mess, and the magic of the season. From hilarious hypotheticals to real-life holiday struggles, we laugh our way through traditions, parenting moments, and the beautifully imperfect reality of family life. It’s lighthearted, relatable, and exactly the reminder we all need that the holidays don’t have to be perfect to be meaningful. Grab your coffee (or eggnog) and join us for some festive fun and honest conversation.
Merry, Messy & Real: Navigating the Chaos of the Holidays
The holidays are here—and so is the chaos 🎄😅 In this episode of Chromosomes & Chaos, we’re leaning into the fun, the mess, and the magic of the season. From hilarious hypotheticals to real-life holiday struggles, we laugh our way through traditions, parenting moments, and the beautifully imperfect reality of family life. It’s lighthearted, relatable, and exactly the reminder we all need that the holidays don’t have to be perfect to be meaningful. Grab your coffee (or eggnog) and join us for some festive fun and honest conversation.
Sober in a Season of Pressure
This week on Chromosomes & Chaos, we’re diving into a topic that hits hard this time of year—sobriety.
The holidays are filled with joy… but also pressure.
Pressure to drink.
Pressure to “join in.”
Pressure to numb instead of feel.
We’re talking about what it actually looks like to stay sober (or simply cut back) in a season where alcohol is everywhere—family gatherings, work parties, stress, expectations, and all the chaos in between.
If you’ve ever felt out of place saying “no thanks,” if you’re rethinking your relations...
The Right Doctor Matters: Pediatric Insights with Dr. Lisa
On this episode, we sit down with Dr. Lisa — a powerhouse pediatrician and a fellow mom to a daughter with Down syndrome. ❤️
We dive into conversations every new family deserves to hear, including:
✨ How to find the right pediatrician for your child
✨ Whether doctors are getting better at delivering a Down syndrome diagnosis
✨ What resources, support, and community are available for families receiving the news for the first time
✨ Plus — an important tool for parents and providers: the Down Syndrome–specific growth charts from the CDC (a must-know for tracking your child’s development).
ht...
Chromosomes & Chaos: The Friendships That Find Us
Friendships don’t all start the same… and they definitely don’t all last the same.
Some fade. Some fight to stay. And some arrive because of a diagnosis you never asked for.
In this episode, we kick things off in Chaos Corner, answering your listener Q&As — including a powerful conversation around comparison being the thief of joy. We’re talking social media spirals, mom guilt, and learning how to come back to your own lane.
Then we dive into friendships:
The ones you grew up with.
The ones you’ve outgrown...
Overwhlemed & Grateful: Interview with Jillian Benfield!!!!!
This week on Chromosomes & Chaos, we got to sit down with the incredible Jillian Benfield — author of Overwhelmed & Grateful and The Gift of the Unexpected. 💛
Jillian was one of the very first people we dreamed of interviewing because of the impact she’s had on our families. She writes so beautifully and speaks straight to the heart. ❤️ Her message about finding purpose and beauty in life’s unexpected turns will stick with you long after you listen.
We are SO thankful for her time, her words, and her light. 🌟
👇 Go show her some love!
...
How To Overcome The Heavy Seasons of Life
This week gets a little wild in Chaos Corner as Amber shares a CRAZY story you don’t want to miss 🤯. We also dive into a few listener Q&As about our favorite things about Addi and Pierce, and wrap up with a real conversation on how to overcome heavy seasons of life when it feels like you’re trying to do it all.
💛 Tune in, laugh with us, and maybe tear up a little too.
Don’t forget to like, comment, and share — it helps us reach more hearts and...
IEPs & The Chaos That Comes With It
This week on Chromosomes & Chaos, we’re talking IEPs — what they really mean, how to advocate for your child, and a few lessons we’ve learned the hard way. Whether you’re brand new to the IEP world or have a few under your belt, this episode is full of real talk and a of course, a few laughs along the way.
And we’re kicking off our newest segment — Chaos Corner! 🙃 Because every week comes with a little bit of crazy, and we’re here to share the “you won’t believe this happen...
The Babies We Hold In Our Hearts: Honoring Pregnancy & Infant Loss Awareness Month
In this episode of Chromosomes & Chaos, host Patty opens up about one of the most difficult chapters of her life — losing her son Hudson shortly after the birth of her daughter Addi. 💔
Patty shares her story with raw honesty and courage, reflecting on the pain, the love that never fades, and the ways she found strength to move forward. This conversation is for every parent who has experienced unimaginable loss — and for anyone who wants to better understand how to show up with compassion and support.
Join us as w...
5 Common Myths About Raising a Child with Down Syndrome
In this episode of Chromosomes & Chaos, we’re tackling some of the biggest myths and misconceptions about raising a child with Down syndrome — the ones we heard before (and even after) our own journeys began.
From outdated beliefs about abilities and independence, to misconceptions about happiness and family life — we’re setting the record straight. Because raising a child with Down syndrome isn’t defined by limitations… it’s defined by love, joy, growth, and a whole lot of beautiful chaos. 💙
Join us as we share real experiences, honest conversations, and what we’ve learned along th
The Moment We Found Out--Our Diagnosis Stories
In this episode of Chromosomes & Chaos, we’re getting real about one of the biggest moments in our journeys — the moment we received our Down syndrome diagnosis.
Was it at birth? Prenatal? A surprise in the delivery room? No matter how you found out, that moment changes everything. We’re opening up about our own experiences — the emotions, the fear, the love — and how those first moments shaped our perspective today.
We also want to hear from you. 💙 How did you receive your diagnosis? Message us or share your story in the comments — because no two...
How Patty & Amber Met
From GiGi’s to Gold’s Gym to the wild world of social media—our paths kept crossing until we finally realized we were meant to team up. In this episode, we’re sharing the story of how two busy Iowa moms raising kids with Down syndrome went from acquaintances to friends to co-hosts of Chromosomes & Chaos.
It’s real, it’s a little chaotic, and it’s the perfect kickoff to our journey together. Hope you enjoy this episode as much as we loved recording it!
Welcome to the Chromosomes & Chaos Podcast
Meet your hosts: Patty & Amber!! On this trailer episode we give you some insight on who we are, how we both have kids with Down syndrome (who also happen to be our oldest) and how we both juggle multiple kids, busy schedules, and all the chaos in between.
Together, we’re sharing the laughter, the tears, the chaos, and the beauty of this journey—because no parent should feel alone. We are so excited your here!