CFStrong: Inform. Educate. Empower.

In this episode in the Living Longer with CF series, Nardia, Jade and Louisa come together to share their lived experiences of living longer with cystic fibrosis and discuss nutrition and exercise. They speak honestly about what has changed over time, what’s helped (and what hasn’t), and how their relationship with food, movement, and their bodies has evolved across different stages of life.

Through personal stories and reflection, they explore the practical and emotional realities of sustaining health, adapting routines, and finding balance all while navigating the complexities of CF, transplant and CF Related Diabetes (CFRD...

⚠️ Trigger Warning:

This episode discusses themes of death, dying well, and end-of-life planning within the context of cystic fibrosis. These conversations can be deeply emotional and may be difficult for some listeners. Please take care while listening and pause or step away if you need to.

In this powerful episode of the CF Together Podcast, Nardia, Jade and Louisa open up an honest, compassionate conversation about what dying well means to them. Together, they explore the importance of planning ahead, communicating wishes, finding comfort, and prioritising dignity and choice. With vulnerability and wisd...

In this heartfelt episode, host Lyndall Grace speaks with Mandy Ali — early childhood educator, CF Together team member, and mum to four-year-old Rory, who lives with cystic fibrosis (CF). Mandy shares the emotional experience of Rory’s diagnosis through newborn screening, describing how she felt deeply overwhelmed then she and her partner focused on working together as a team, drawing on the strength of their family unit to find creative, consistent ways to care for Rory.

Mandy reflects on how her early childhood background has shaped her parenting—transforming daily cystic fibrosis care into moments of connection, play...

In this CFStrong podcast episode, Alexa, a mother from Melbourne, shares her emotional journey after receiving her daughter Zoe's diagnosis of cystic fibrosis. Alexa vividly recounts the moment she received the news, the overwhelming emotions that followed, and the subsequent whirlwind of appointments and reactions from family and friends. Despite initial struggles and feelings of isolation, Alexa shares the importance of allowing oneself to feel the range of emotions, seeking information, and finding support. She offers reassurance to other parents facing similar situations, highlighting the gradual acceptance and adjustment process, and emphasising that while the journey may be daunting, there...

In this final episode of the current CFStrong podcast series, co-host Brad Dryburgh engages six young adults living with cystic fibrosis (CF) in a profound discussion about their philosophy for leading fulfilling lives despite the challenges posed by the condition. Through heartfelt reflections, the guests share their deeply personal perspectives on resilience, acceptance, and positivity in the face of adversity. They emphasise the importance of embracing life's unpredictability, maintaining a positive mindset, and finding strength in vulnerability. From acknowledging the unfairness of living with CF to harnessing the power of trust and resilience, each guest offers unique insights into navigating...

In this episode of the CFStrong podcast series, co-host Brad Dryburgh engages in candid discussions with six individuals living with cystic fibrosis (CF) in their 20s. Addressing the question of fears and worries for the future while living with CF, each guest shares their unique perspective. From concerns about the broader CF community and the impact of treatment disparities to personal reflections on life expectancy, relationships, career aspirations, and the emotional toll of witnessing loved ones' mortality, the conversation delves into the complexities of navigating life with CF. Despite these fears, the episode highlights the resilience and self-awareness of the...

In this episode of the CF Strong podcast, co-host Brad Dryburgh engages in an open dialogue with six young adults living with cystic fibrosis (CF) about the often-sensitive topic of body image. As the eighth episode in the series, each guest, reflects on their personal experiences and struggles with body image, shedding light on the unique challenges faced by individuals with CF. The candid conversations touch upon issues such as acne, weight gain, societal perceptions, and the journey towards self-acceptance. The guests share their personal triumphs and the liberating moments when they embraced their bodies. Tune in to the Podcast...

In this episode of the CFStrong podcast series, Brad Drybugh explores the financial challenges faced by individuals living with cystic fibrosis (CF). Through engaging conversations with six guests, the episode addresses the impact of CF on financial planning and explores benefit schemes that have helped along the way. The guests share candidly about their struggles, successes, and strategies for managing finances, touching on topics such as relying on mobility allowance and grappling with fluctuating incomes to navigating the complexities of purchasing a home and managing expenses related to CF treatments and healthcare. Tune in to the Podcast to hear first-person...

In this episode of the CFStrong podcast, co-host Brad Dryburgh explores the world of careers for individuals in their 20s living with cystic fibrosis (CF). Featuring insights from six guests, the episode addresses the question of whether they are pursuing their ideal careers and if they've faced job rejections due to CF. The candid responses reveal diverse experiences, From finding fulfillment in music and stand-up comedy to challenges in securing employment due to health-related limitations, the guests reflect on the impact of CF on their professional journeys. Despite encountering obstacles and misconceptions, they remain resilient, determined to follow their passions...

In this episode of the CFStrong podcast, co-host Brad Dryburgh leads a candid discussion on the complexities of explaining cystic fibrosis (CF) to romantic partners. Through the experiences of six individuals living with CF, listeners gain valuable insights into the challenges and triumphs of disclosing their condition in relationships. From grappling with feelings of burden and anxiety to finding acceptance and support, the guests share their personal journeys of opening up about CF to their partners. Some recount initial struggles and misconceptions, while others reflect on the importance of honesty and self-acceptance in fostering meaningful connections. Tune in to the...

In this episode of the CFStrong podcast, co-host Brad Dryburgh guides listeners through a discussion on fitness and wellness routines among individuals living with cystic fibrosis (CF). With a focus on the experiences of six young adults with CF, the episode explores how their fitness regimens have evolved over time and the benefits they've experienced. From traditional physiotherapy routines to post-Trikafta adjustments, the guests share their diverse approaches to staying active and maintaining well-being. While some engage in activities like running, Pilates, and weightlifting, others find solace in more unconventional pursuits like drumming and golf. Despite the challenges posed by...

In this engaging episode of the CFStrong podcast, co-host Brad Dryburgh explores the intricate relationship between cystic fibrosis (CF) and mental health. The third episode of the series features candid insights from six guests – all in their 20s - as they share their personal journeys and strategies in navigating the complex intersection of CF and mental well-being. From the challenges of social anxiety and the pressure to explain their disease to others, to the impact of CF on life choices and the importance of seeking mental health support, the guests delve into the highs and lows of their mental health ex...

In this engaging episode of the CF Strong podcast, co-host Brad Dryburgh delves into the unique perspectives of six guests, as they discuss vaping and how it intersects with the challenges of cystic fibrosis. The candid conversations reveal a spectrum of attitudes towards vaping, from relaxed approaches to strict stances against it. The guests share personal struggles, experiences with peer pressure, and the complexities of dealing with vaping in social settings. As Brad aptly guides the discussion, the episode sheds light on the invisible struggles faced by those with cystic fibrosis and the delicate balance required to navigate decisions around...

Have you ever wondered how to balance a social life while living with cystic fibrosis? You are not alone. Hosted by Bradley Dryburgh, himself a young person living with cystic fibrosis (CF), this latest series of the CFStrong podcast delves deep into the perspectives of six young adults facing similar challenges. In this opening episode, Adam, Blake, Caitlin, Ellie, Sam, and Tayla share candid accounts of how they navigate a social life while managing their CF. From Adam's seamless integration of CF into friendships to Tayla's candid admission of hermit tendencies, each story offers a unique perspective into the delicate...

In this podcast, Jen Hauser, CFPhysio.com founder and physiotherapist, caught up with Dr Sue Keating and Nicki to learn more about menopause in CF. This discussion shares some of Nicki’s journey navigating CF symptoms, post lung-transplant symptoms/medication side effects, and possible menopause. With the increasing age of survival in CF, menopause is becoming a health experience that women with CF are having to navigate, and the literature would suggest a 2-3 years earlier onset than those women without CF. This podcast discussion is only the tip of the iceberg. More resources are in the making to help wo...

In this episode, CF Strong podcast co-host Sarah and Clinical Nurse Consultant Kate Johnson discuss vaping and CF. Transcript Voice Over : Welcome to the CF Strong Podcast. CF Strong covers the successes and challenges faced by those living with cystic fibrosis. You'll hear first person stories, conversations with health professionals, friends and partners. Just a heads up, guests may share their personal views about treatments and health management, but please remember this is not medical advice and you should always follow the advice of your clinic team regarding your health. Sarah: Hello everybody and welcome to this quick fire one...

In this episode, CF Strong podcast co-host Sarah and Clinical Nurse Consultant Kate Johnson discuss thrush and CF. Kate explains that females with CF, in particular, are prone to yeast infections, manifesting as thrush in the mouth or throat and fungal vaginitis in the vaginal area. Kate discusses the causes, including disruptions in pH balance due to antibiotics and corticosteroids used to treat lung infections. She recommends over-the-counter antifungal treatments and discusses potential prescription medications for severe cases.  Kate encourages open communication with the healthcare team, emphasising the importance of seeking help without embarrassment. Transcript Voice Over: Welcome to the C...

In this episode, CF Strong podcast co-host Sam Lefoe chats with Clinical Nurse Consultant Kate Johnson about how to balance fun and partying while living with Cystic Fibrosis. Kate discusses the considerations for individuals with CF regarding alcohol consumption, highlighting the increased risk of liver damage due to the strain on the liver from processing alcohol. Additionally, she emphasises the importance of moderation, safety, and communication with the healthcare team. Regarding smoking, Kate advises avoidance due to its detrimental effects on lung health and encourages open discussions about the risks and support for those trying to quit. The views, experiences...

In this episode, CF Strong podcast co-host Sam Lefoe chats with Clinical Nurse Consultant Kate Johnson about how to balance time with friends while living with Cystic Fibrosis. Kate delves into the challenges of balancing cystic fibrosis (CF) responsibilities, such as medication adherence, with the desire to partake in typical teenage activities. She suggests normalizing CF as part of one's identity rather than letting it define them. She discusses strategies to integrate treatments into daily life, suggesting morning medication routines and incorporating physical activities like sports or walks as incidental physio. Kate encourages individuals to consider how they perceive others...

In this episode, CF Strong podcast co-host Sam Lefoe and Clinical Nurse Consultant Kate Johnson discuss sex and protection for people living with CF. Kate emphasises the importance of safe sex practices for everyone, as individuals with CF face the same risks of contracting sexually transmitted diseases. She provides insights into the potential impact on health, fertility, and the transmission of diseases, highlighting the need for protection in various types of sexual activities. Kate discusses contraceptive options, including condoms, intrauterine devices, and hormonal implants, and encourages open communication with healthcare teams for personalised advice. Transcript Voice Over: Welcome to the...

In this episode, CF Strong podcast co-host Sam Lefoe and Clinical Nurse Consultant Kate Johnson discuss whether the kids of those living with CF, will get CF too. Kate explains the recessive nature of the CF gene, clarifying that for a child to have CF, both parents must carry or have CF mutations. She discusses the different scenarios, explaining that if both partners have CF, there's a 100% chance of the child having CF. If one partner is a carrier, the chance is 50%, and if both are carriers, there's a 25% chance. Kate encourages individuals to undergo genetic screening when considering starting...

In this episode, CF Strong podcast co-host Sam Lefoe and Clinical Nurse Consultant Kate Johnson discuss having kids while living with Cystic Fibrosis. Kate highlights the advancements in medical technology, gene modulator therapy, and improved overall health, leading to increased fertility among CF patients. She discusses the challenges and options for both males and females and the positive impact of gene modulator therapy on female fertility. The episode aims to educate and dispel misconceptions about parenthood for individuals with CF. The views, experiences or comments shared on this website are not medical advice and may not reflect opinions or beliefs...

In this episode, CF Strong podcast co-host Sarah and Clinical Nurse Consultant Kate Johnson discuss late development and periods while living with Cystic Fibrosis. The views, experiences or comments shared on this website are not medical advice and may not reflect opinions or beliefs of Cystic Fibrosis Community Care. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health. Notice: JavaScript is required for this content. var formDisplay=1;var nfForms=nfForms||[];var form=[];form.id='7_21';form.settings={"objectType":"Form Setting","editActive":true,"title":"CFStrong Transition - Content Feedback","created_at":"2022...

"CF makes us resilient," In this episode of the CF Strong podcast, co-host Sam Lefoe catches up with Rafi to discuss life with Cystic Fibrosis.   Rafi, 41, was diagnosed with Cystic Fibrosis at birth. However, he says CF gave him a unique perspective on life and death, which fueled his curiosity and desire to explore. This exploration led him to storytelling through photography and filmmaking, allowing him to share his life story and experiences. One of Rafi’s notable projects is a hip hop album titled "Life Expectancy," which delves into the complexities of living with CF. The album also includes a d...

Murray on transplant In this episode of the CFStrong podcast, we speak with Murray who had a double lung transplant ten years ago. We discuss Murray's experience pre and post-transplant, how he managed the mental and emotional side of transplant, what he's been up to for the last decade and his advice for approaching transplant. Transcript   Coming soon. This podcast was published in November 2022. If you would like to share your story, please contact us at admin@cfcc.org.au. We’d love to hear from you and so would our listeners. 

Tony on clinical trials Curious about clinical trials? Interested to learn more about how to take part? Keen to hear from someone who has been there and done that? In this episode of the CFStrong podcast we chat with Tony about his experience getting involved in clinical trials. Tony shares his experience and his advice for anyone interested in putting their hand up for a clinical trial. ”Look, I would say it's important they do the homework, read a little bit about the medication, if you can. Nine times out of 10, it's there's nothing about on the internet, but in sa...

Sinus and CF In this episode of the CFStrong podcast, we discuss sinus and CF with ear, nose and throat specialist, Dr Catherine Banks; president of CFPhysio and experienced physiotherapist, Jen Hauser; and co-host of the CFStrong podcast and adult with CF, Sam Lefoe. The wide-ranging conversations covers just what our sinuses are, what the symptoms of sinus disease are and why it can be challenging to diagnose for people with CF. We also cover what the treatment options are and where to find more information. Transcript   Coming Soon. This podcast was published in October 2022. If you would like to s...

Bryce on travelling with CF Travelling with CF can sometimes feel daunting. There's a lot to think about. But Bryce, a teacher from NSW who lives with CF, says the effort is more than worth it. In this episode, Bryce chats about travelling with CF, the tips and tricks that worked for them and their advice to anyone wanting to travel. Transcript Coming soon. This podcast was published in October 2022. If you would like to share your story, please contact us at projects@cfcc.org.au. We’d love to hear from you and so would our listeners. 

CFPhysio and navigating fatherhood part 2 This episode of the CFStrong podcast is thanks to our collaboration with CFPhysio This is the second episode to navigating fatherhood with CF. Sam, a young man with a dedication to his daily routine, and his health shares with us some of his journey with CF. Sam, who has a very full plate of life, on top of juggling a chronic health condition walks us through some of the challenges, the ups and downs, and the decisions when starting a family. Sam is honest in sharing his experiences learning how to prioritise the things that...

CFPhysio and navigating fatherhood part 1 This episode of the CFStrong podcast is thanks to our collaboration with CFPhysio Sam, a young man with a dedication to his daily routine, and his health shares with us some of his journey with CF. Sam, who has a very full plate of life, on top of juggling a chronic health condition walks us through some of the challenges, the ups and downs, and the decisions when starting a family. Sam is honest in sharing his experiences learning how to prioritise the things that bring him joy whilst upholding the tasks that keep his...

Kate on parenting and CF In this episode of the CFStrong podcast, we speak with Kate about navigating CF and parenting. We discuss Kate's journey to becoming a parent, how she manages her health while parenting and how she talks with her son about CF and what the future looks like. ”Now as he's a teenager, it's easy. But when he was little, I really focused massively on my health as well as parenting... you look at people that have got multiple kids, child three or four just fits in, right. So that's sort of the approach I took with my...

Bryce on work, family and CF In this episode of the CFStrong podcast, we speak with Bryce, a teacher from NSW, about work and family and how he manages both while also taking care of his health. ”A lot of people who are coming in to having a family think that they need to be on top of it all the time, you just, you can't be and it's hard. And it's tough. And it's not going to be easy all the time. There's certain things you can do to make it easier. But sometimes I'm just not and it's, so...

CF and the NDIS In this episode of the CFStrong podcast we speak with Ben from Trusted Care, a subsidiary of CF Queensland, about the NDIS. We explore what the NDIS is, how people with CF are accessing support from the NDIS and what advice Ben has for anyone thinking about applying for the NDIS. ”It's about educating people in the NDIS. That's real advocacy, helping people become educated and better equipped to understand and learn the way to speak about the NDIS, the way to approach the NDIA, the way to access all of that. It's all an education pro...

CFPhysio on exploring the huff This episode of the CFStrong podcast is thanks to our collaboration with CFPhysio. Sit down with experts in their field, Dr Brenda Button, Kathleen Hall, and Esta Tannenbaum, physiotherapists who have worked with individuals with CF across the lifespan, and learn more about huffing. This technique is integral to all airway clearance in CF. Understanding more about what is being achieved in the airways when performing this technique will empower you to develop a huff that works for your airways. This is suitable for healthcare professionals and individuals with CF. ”The ears are, as physio's, ou...

Scott on fatherhood and CF In this episode of the CFStrong podcast, we speak with Scott about being a dad, his journey to fatherhood and his advice for others thinking about having a family of their own. This podcast was published in June 2022. If you would like to share your story, please contact us at admin@cfcc.org.au. We’d love to hear from you and so would our listeners. 

Alex on parenting and CF This episode of the CFStrong Podcast is thanks to our collaboration with CFPhysio. Dive into the second chapter to “It Takes a Village” with Alex and Dr Benda Button. Alex once again shares with sensational vulnerability, courage and honesty her journey being a mum. Alex has amazing insight, and she has learnt over time, and with reflection the importance of prioritising her oxygen first when parenting. ”You can't compare yourself to other parents who don't live with a chronic illness because it's such a different experience. —Alex ”I absolutely love being a mother, but I really nee...

James on staying active and sharing his CF story In this episode of the CFStrong podcast we speak with James about growing up with four brothers, keeping active and playing sport and what helped him to open up about and share his CF story with his teammates.   "I kept it a secret, you know, as much as I could from pretty well most people... But then when I got towards 27 I started slowing down a bit more again. And that's when I started to open up... It actually worked out pretty well. And I do probably wish I probably did s...

Alex on pregnancy and parenthood This episode of the CFStrong Podcast is thanks to our collaboration with CFPhysio. Take a journey with Alex, as she shares her experience with Dr Brenda Button of planning, preparing and embarking on pregnancy with CF. Alex is a talented photographer, partner, mother, and strong advocate for her healthcare. This podcast provides insight on so many aspects of living with CF, with the key message: rally your team, create your village, and live the life you maybe never dreamed of. ”...what I would say, if someone was thinking about falling pregnant, is just make sure yo...

Amanda on why asking for help makes you strong In this episode of the CFStrong podcast we hear from Amanda about her experience living with CF. Amanda discusses what she is most proud of, the importance of the CF community and the challenges of losing friends with CF. She talks about the value of being ok with not being ok and why you should ask for help when you need it. This is the second episode of our two-episode chat with Amanda. “…the help is there. But you've got to ask, and it's not—you don't look weak, you don't look s...

Amanda on kicking goals and the value of strong support networks: part one In this episode of the CFStrong podcast we hear from Amanda about her experience growing up with CF, the importance of her support network and—literally—kicking goals. Amanda discusses playing contact sport, how she dealt with her health taking her away from the sport she loved and her decision to get back on the football field. This is the first episode of our two-episode chat with Amanda. “…as I was growing up, I kind of found that they were the reason why you got through the hospital...