DSACO: Up for Discussion

What would you tell yourself on the day you learned your child had Down syndrome?

In this heartfelt episode of DSACO: Up for Discussion, host Sarah Soell welcomes fellow moms for a conversation about raising children with Down syndrome, finding community, and how their expectations have changed over the past two decades.

Together, they reflect on early fears, meaningful friendships, and the moments their children challenged assumptions about what was possible. They also explore what “We Wouldn’t Change a Thing” means while acknowledging challenges and advocating for greater opportunities.

In this episode:

Twenty-six years ago, a group of dedicated DSACO families and volunteers brought the first Buddy Walk to central Oklahoma. What began as a new community event has grown into one of DSACO’s most meaningful annual traditions.

In this episode of DSACO: Up for Discussion, Sarah speaks with members of the DSACO community who helped organize that very first walk. They reflect on how the idea began, the challenges of planning an event without social media, the community’s response, and the unforgettable moments that made the first Buddy Walk so special.

Listeners will also hear...

Fundraising with Heart: How Gentry’s Gems Rallies a Community

In this episode of DSACO: Up for Discussion, host Sarah Soell talks with Elizabeth Duren, leader of Gentry’s Gems, about fundraising for the Down Syndrome Festival & 5K.

Gentry’s Gems has been a top fundraising team for the past several years. Elizabeth shares the heart behind the team, the importance of telling your story, and how family, friends, businesses, and community members can work together to support DSACO’s mission.

Sarah and Elizabeth also discuss practical ways to begin fundraising, keep supporters engaged...

The 2026 Down Syndrome Festival & 5K is quickly approaching! In this episode of DSACO: Up for Discussion, host Sarah Soell is joined by DSACO Program Coordinator Rylee Cole to share everything listeners need to know before the event on September 26.

Rylee explains what makes the Festival & 5K such a meaningful celebration for DSACO families and the Central Oklahoma community. From the 5K and family activities to opportunities for connection and celebration, there is something for everyone—and you do not have to participate in the race to enjoy the festival!

Sarah and Rylee also discuss the im...

In this episode of DSACO: Up for Discussion, we sit down with Jen Randle to explore the Oklahoma Youth Leadership Forum, also known as YLF, and the important work of the Developmental Disabilities Council of Oklahoma.

YLF gives high school students with disabilities an opportunity to strengthen their leadership and self-advocacy skills, build confidence, explore life after high school, and connect with other young leaders. Jen shares what participants can expect from the program, who is eligible to apply, and the lasting impact these experiences can have on future independence and success.

We also discuss...

In this episode of DSACO: Up for Discussion, Sarah sits down with Michelle Sie Whitten, Co-Founder, President and CEO of the Global Down Syndrome Foundation.

Michelle shares how GLOBAL is advancing research, improving healthcare and advocating for individuals with Down syndrome. They discuss the NIH INCLUDE Project, promising areas of research, the work of the Linda Crnic Institute and the Anna and John J. Sie Center, and the resources available to families, self-advocates and professionals.

They also look ahead at the future of Down syndrome research and explore how families can help create meaningful change...

Advocacy starts with one voice—but together, those voices create lasting change.

In this episode of DSACO Up for Discussion, Sarah Soell sits down with Wanda Felty, Assistant Director and Community Leadership & Advocacy Coordinator at the Center for Learning and Leadership (CLL) at the University of Oklahoma Health Sciences Center, for an inspiring conversation about advocacy, leadership, and empowering individuals with disabilities and their families.

Whether you're a parent just beginning your journey, a self-advocate, a professional, or someone passionate about inclusion, this episode is filled with practical advice, valuable resources, and encouragement to help yo...

Every child deserves a safe, supportive environment where they can thrive. In this episode of DSACO: Up for Discussion, we're joined by Joe Dorman, CEO of the Child Advocacy Center, to discuss the vital work being done to protect children, support families, and strengthen communities across Oklahoma.

Joe shares what child advocacy really means, the services the Child Advocacy Center provides, and how collaboration between organizations helps create better outcomes for children and families. We also talk about recognizing when a child may need support, common misconceptions about child advocacy, and ways community members can make a...

In this episode of DSACO: Up for Discussion, Sarah Soell sits down with longtime friend of DSACO, race ambassador, coach, and event emcee Mark Bravo to talk all things 2026 Down Syndrome Festival & 5K.

Mark shares how he first became involved with DSACO, what keeps him coming back year after year, and why he believes this event has the power to change lives. Together, Sarah and Mark walk through everything you need to know before race day—from the 5K and 1-Mile Fun Run to the Awareness Walk and festival activities that bring thousands of people together in ce...

In this episode of DSACO: Up for Discussion, we sit down with Wyatt from British Swim School to talk all about swim safety, adaptive swim lessons, and the importance of water confidence for individuals with Down syndrome.

As summer begins and families spend more time around pools, lakes, and water parks, this conversation is an important reminder that water safety can truly save lives. Wyatt shares practical tips for parents, discusses how swim lessons can be adapted for different learning styles, and explains why swimming is such an important life skill for self-advocates.

You may...

Communication is a human right, and on today’s episode of DSACO: Up for Discussion, we’re taking a closer look at the upcoming Inclusive Communication Conference. We’re joined by the individuals helping bring this meaningful event to life as we discuss the inspiration behind the conference, the importance of accessible and inclusive communication, and how creating spaces where everyone has a voice can make a lasting impact.

Throughout this episode, we dive into how communication goes far beyond spoken words and why access to communication should be available to everyone. We also discuss who the confer...

In this episode, we sit down with Grace Simpson from Special Olympics to talk about the power of inclusion, advocacy, and community.

We dive into what Down syndrome really means, break down common misconceptions, and highlight how programs like Special Olympics are creating meaningful opportunities for individuals with intellectual disabilities to thrive.

What You’ll Learn

Get an exclusive behind-the-scenes look at how DSACO: Up for Discussion comes to life. In this special episode, Executive Director Sarah Soell sits down with the podcast’s producer, Adie, to talk about everything that goes into creating each episode—from brainstorming ideas to hitting publish.

Listeners will learn what a podcast producer actually does, how episodes are planned and recorded, and what it takes to keep each conversation aligned with DSACO’s mission. Adie also shares favorite moments, challenges, and what makes this podcast so meaningful to be a part of.

This episode is perfec...

In this episode, we explore the powerful role AmeriCorps plays in supporting nonprofits and strengthening communities. Sarah is joined by representatives from AmeriCorps to break down how national service programs operate, what “capacity building” really means, and how organizations like DSACO benefit from these partnerships.

We discuss how AmeriCorps differs from traditional volunteer programs, the types of service opportunities available, and how individuals can get involved. The conversation also highlights the real impact AmeriCorps members have on nonprofits, from expanding programs to building long-term sustainability.

Listeners will gain insight into how AmeriCorps selects partner organizations, why...

n this special episode of DSACO: Up for Discussion, we sit down with an incredible panel of parents who share their experiences raising a loved one with Down syndrome. Each story is unique, filled with moments of growth, joy, and powerful perspective.

Our panel opens up about what it was like when they first received their child’s diagnosis, the milestones that have meant the most, and the many ways their children continue to inspire and shape their families. They also share honest insights into common misconceptions about Down syndrome and what they wish others better understood.

In this powerful and inspiring episode, we sit down with an incredible panel of self advocates who are currently in college.

They share their experiences navigating campus life, building independence, overcoming challenges, and pursuing their dreams. From first-day nerves to favorite classes, this conversation highlights what inclusion truly looks like in action.

College is about growth, confidence, and opportunity — and our panel reminds us that students with Down syndrome belong in every space where dreams are built.

💙 In This Episode, We Discuss:

In this episode of DSACO: Up for Discussion, we continue our employment series with a real-life success story.

Last episode, we introduced Megan Wilson, DSACO’s Employment Services Specialist, and discussed how employment services work through DRS contracts and individualized support.

This week, we move from explanation to experience.

Megan is joined by Courtney — her very first client working under contract — to share what employment looks like in action. Courtney opens up about starting her job, building confidence, learning new skills, and what earning her own paycheck means to her.

Together, they t...

We’re officially kicking off Season 2 of DSACO: Up for Discussion, and we’re starting with a topic that matters deeply to individuals with Down syndrome, their families, and our community: employment.

In this episode, we sit down with Megan Wilson, DSACO’s new Employment Services Specialist, to talk all things employment services, skill-building, and creating meaningful, competitive job opportunities for individuals with Down syndrome.

Megan works under DRS employment contracts and plays a key role in helping individuals gain confidence, build workplace skills, and find jobs that align with their strengths and goals. She breaks...

As we wrap up Season 1 of DSACO: Up for Discussion, we’re taking a moment to reflect on the conversations that shaped this season and the community that made it possible.

This season covered the full journey of life with Down syndrome — from early childhood intervention and IEPs, to middle school and high school transitions, to adulthood, employment, health, relationships, and self-advocacy. Each episode centered on real experiences, practical resources, and the reminder that support and inclusion truly change lives.

In this finale, Sarah and Kathy reflect on the themes that kept coming up throughout the...

In this episode of DSACO: Up for Discussion, Sarah sits down with Robin Kohn to talk all about one of DSACO’s most empowering programs — the Self-Advocacy Center (SAC).

Robin shares what SAC is, who it’s designed for, and why self-advocacy is such an important skill for individuals with Down syndrome. From building confidence and communication skills to learning how to speak up for yourself, SAC helps self-advocates grow both personally and socially in a supportive, encouraging environment.

Listeners will hear what a typical SAC session looks like, the kinds of skills participants work on, an...

As we wrap up another incredible year at the Down Syndrome Association of Central Oklahoma, Kathy and Sarah sit down to reflect on all that 2025 has brought to our DSACO community.

In this episode, we talk about:

We’re also sharing a few important updates and ways to...

In this episode of DSACO: Up for Discussion, we sit down with Dr. Annie Baghdayan, BCBA-D, Executive Director of the National Center for Disability Education & Training and Program Director of OU’s Pre-Employment Transition Services (PreETS) at the University of Oklahoma.

Dr. Baghdayan shares her journey into Applied Behavior Analysis (ABA) and disability advocacy, explains what ABA looks like in real life, and clears up common misconceptions surrounding the therapy. We also discuss how person-centered, evidence-based ABA helps individuals build essential life and job-ready skills.

You’ll hear how the OU PreETS program supports students with...

In this episode, we take listeners behind the scenes of one of DSACO’s most joyful and empowering annual events: the Uniqu3ly 21 Fashion Show. This isn’t just a runway – it’s a celebration of confidence, self-expression, and community. Our models, all self-advocates, step into the spotlight and show the world what inclusion truly looks like.

To help us explore the heart of this event, we’re joined by Amy Douglas, a dedicated leader who has helped shape the fashion show into what it is today. Amy walks us through how the event first began, the inspiratio...

The holidays are full of excitement — and sometimes overstimulation. In this episode of DSACO: Up for Discussion, host Sarah Soell chats with Jessica McLaughlin, an occupational therapy specialist who works with children of all ages, to explore how families can create calmer, more inclusive celebrations this season.

Jessica shares practical sensory-friendly strategies, explains how play supports development for individuals with Down syndrome, and even gives her favorite “OT-approved” gift ideas that double as therapy tools. Whether you’re a parent, teacher, or grandparent, this conversation will help you make the holidays both fun and functional.

🧩 In This Epi...

In this episode of DSACO: Up for Discussion, host Sarah Soell talks with Renee Sansom Briscoe, Transition Coordinator for the Oklahoma Department of Rehabilitation Services (DRS), about how DRS helps individuals with disabilities prepare for meaningful employment and independence.

Renee explains how Pre-Employment Transition Services (Pre-ETS) provide a bridge from school to adulthood and shares how families can start the DRS application process. This episode offers clear, step-by-step insights into accessing vocational support and real success stories from across Oklahoma.

In this episode, you’ll learn:

Sibling Panel

What is it really like growing up with a sibling who has Down syndrome? In this special episode, we sit down with brothers and sisters who share their personal experiences—the joys, the challenges, and everything in between.

Our sibling panel opens up about what they’ve learned, how their perspectives have grown, and the unique bond they share with their brother or sister with Down syndrome. From funny childhood memories to honest conversations about responsibility and advocacy, these stories shine a light on the sibling experience that often goes untold.

In t...

Today we sit down with Dr. Mitchell West, a board-certified OB-GYN, to demystify women’s health across the lifespan—from the first well-woman visit to postpartum care and menopause. We cover what happens at an annual exam, common myths, how to prepare for appointments, and how caregivers can advocate for women with intellectual and developmental disabilities (IDD). Dr. West shares practical tips you can use today, plus red flags that deserve prompt attention.

If you have questions after listening, please email us at info@dsaco.org.

Why This Matters (Key Takeaways)

In this heartfelt episode, we sit down with Heather Hancock-Blackburn, a self-advocate and long-time member of the Down syndrome community, to talk about her experiences with dating, love, and marriage. Heather opens up about her journey to finding meaningful relationships, the importance of communication and trust, and what it means to navigate love as a self-advocate.

Listeners will hear Heather share:

Education opens doors—and at DSACO, tutoring is helping make sure every student has the chance to thrive. In this episode of Up for Discussion, we welcome Bettie, one of DSACO’s dedicated tutors, to share her passion for helping students with Down syndrome reach their fullest potential.

Bettie walks us through what tutoring at the Enrichment Center looks like, from building strong foundational skills to encouraging confidence and independence in learning. She shares success stories of students who have grown academically and personally through one-on-one support, and highlights the importance of creating an inclusive, encouraging environment wher...

In this episode of Up for Discussion, Kathy and Sarah sit down to talk about the unique journey of navigating high school for students with Down syndrome. From IEP meetings and inclusive classrooms to social experiences and preparing for graduation, this episode dives into what these formative years really look like for families and self-advocates.

Whether you're a parent entering the high school phase or an educator looking to support inclusive practices, this episode offers real stories, helpful insights, and practical tips for success during the teen years.

Topics covered:

Middle school can be a time of major transitions—socially, emotionally, and academically—for any student. For families of children with Down syndrome, this stage may come with new questions, challenges, and opportunities for advocacy.

In this episode, Kathy Trout and Sarah Soell are back to talk all things middle school—from class changes and lockers to growing independence and shifting support needs. They share insights on how to best prepare for the middle school years, what to expect, and how DSACO is here to help every step of the way.

Whether you're a parent, educat...

In this episode of DSACO: Up for Discussion, we're talking all things Down Syndrome Festival & 5K! Whether you're a long-time supporter or brand new to the event, this episode will get you excited for the best day ever.

We sit down with Leslee Boswell, DSACO's Executive Director, to talk about the heart, history, and impact behind this incredible day. From family teams and custom shirts to the inclusive energy that brings thousands together — it's more than just a run, it's a celebration of community, awareness, and advocacy.

In this episode, we sit down with Eilene Franks, a passionate mother and advocate, to explore the incredible impact of SoonerStart—Oklahoma’s early intervention program for infants and toddlers with developmental delays or disabilities. Eilene shares her personal journey with her son Hudson, who has Down syndrome, and how SoonerStart helped lay the foundation for his growth and success.

We discuss how the program works, who qualifies, and the life-changing benefits it provides for families across the state. Whether you're a new parent, a caregiver, or simply want to learn more about the resources available in Okla...

In this episode, hosts Sarah Soell and Kathy Trout take a closer look at medical diagnoses commonly associated with individuals with Down syndrome. This conversation isn’t meant to alarm but to empower families, caregivers, and advocates with knowledge about what to watch for and how to better support their loved ones throughout life.

A special focus of this episode highlights the groundbreaking INCLUDE Project (Investigation of Co-occurring conditions across the Lifespan to Understand Down syndrome) — a national research effort that is transforming how we understand and address medical conditions impacting individuals with Down syndrome.

Laun...

Episode Summary:

In this episode of Up for Discussion, we're joined by Lucia to break down what it means to "start the clock" when it comes to IEPs (Individualized Education Plans). From initial evaluations to eligibility timelines, Lucia helps parents, caregivers, and educators understand the critical first steps in the special education process. This episode is especially helpful for anyone navigating the Oklahoma public school system and looking to advocate effectively for a student with disabilities.

Key Topics Covered:

In this episode of Up for Discussion, we’re joined by Rylee, DSACO’s Program Coordinator, to explore the many ways DSACO supports individuals with Down syndrome and their families across Central Oklahoma. From educational workshops and new parent outreach to adult programs and inclusive community events, Rylee shares how DSACO empowers families through action, advocacy, and connection. Whether you’re new to DSACO or a longtime supporter, this conversation will give you a deeper look into the heart of our mission.

In this episode, Sarah and Kathy break down one of the most asked-about topics in the disability services world — the waiver.

If you’ve ever felt overwhelmed trying to understand what the waiver is, who qualifies, or how to even begin the application process… you’re not alone! We’re here to simplify it and offer helpful insights for families just starting out or those waiting on services.

We’ll cover:

In this episode of Elementary Adventures, Sarah Soell and Kathy Trout open up about the real-life challenges and heartfelt moments of raising a child with Down syndrome through school. From navigating IEP meetings and social struggles to celebrating small victories, they share personal stories, helpful tips, and encouragement for families walking a similar path.

Welcome to the very first episode of DSACO: Up for Discussion! In this episode, hosts Sarah Soell, Executive Director of DSACO, and Kathy Trout, Office Assistant, take you on a personal journey, sharing their experiences as parents of a child with Down syndrome.

From the moment they received the diagnosis to navigating emotions, challenges, and the incredible joy that followed, this episode is all about real stories, raw emotions, and the power of community. Whether you’re a new parent, a family member, or someone looking to learn more about Down syndrome, this episode is for you.