Whats The Matter With Me Podcast
Welcome to What’s The Matter With Me?—a podcast where I share what I’m going through living with multiple sclerosis and trigeminal neuralgia. I’m John: disabled wheelchair user, husband, parent, and host.
Episode X.6: Wheelchair Pep Talk
John talks MS recovery, Section 504 history, naval drones, and media reviews from Fat Joe to David Rodigan. A raw, humorous look at why life is worth living.
Episode X.6: Wheelchair Pep Talk
John talks MS recovery, Section 504 history, naval drones, and media reviews from Fat Joe to David Rodigan. A raw, humorous look at why life is worth living.
Block Party
Hey kids, What’s The Matter With Me? Podcast is back
Local & Culture
San Leandro neighborhood block party lore, Oakland Raiders Al Davis neighborhood history, Kamasi Washington septet review Yoshi’s
Food & Cooking
Romanian sauerkraut and casing-free sausages, homemade fermented sauerkraut airlock, Tokyo Ginza alleyway yakitori skewers
Selfie
Block Party SelfieContact me and I’ll give you a shoutout.
Notes
Yesterday there was a typhoon in Japan. We had the neighborhood block party. The Romanian guy up the street. Mangal grills are Easter...
Cooking To Meet Yourself Where You Are
Yewande Komolafe
Pragmatic approaches to accessible cooking in “How Losing My Limbs Turned Me Into a Different Kind of Cook,” an article by chef and food writer Yewande Komolafe and “Cooking at Home: Or, How I Learned to Stop Worrying About Recipes (and Love My Microwave): A Cookbook” by David Chang and Priya Krishna. Plus, Chris Fleming, Farkle, various and sundry other things.
shoutouts: Rocky, Joe, cousin eric aand tracy, tall john and my mom and to my wife
send me an email and I’ll send you the biggest shout out probably the best shout out<...
Vulnerable Population
Synopsis
In “Vulnerable Population.” riding county paratransit service in my wheelchair. Matt gets uneasy around the other parents. Who’s more pathetic: the Peace Advocate or the I.T. Guy?
War
In “War,” remembering my dad as an antiwar veteran and trying to make sense of current international relations. Record reviews: Magic Fig, Wet Leg, and Geese. Reading Helen DeWitt and Ilya Gridneff’s new book “Your Name Here.”
Magic Fig, “Valerian Tea” Wet Leg, “Moisturizer” Geese, “Getting Killed” When I saw this a moviegoer died in the middle of the picture Your Name HereI Regret Almost Everything
In this episode, the season premiere of Season Ten, the podcast returns from a rather long hiatus with a review of “I Regret Almost Everything,” a memoir by New York City restaurant man Keith McNally, leading us into a little meditation on science and humanity.
Imaging The Disabled Body
Intro — Repeat Prints — Imaging the Disabled Body — Know Thyself — Chair Update — New Hope For Argumentative Life — Kids Dox You — Wife Went To Japan — “The Blue Mask” Lou Reed LP — Dad Time — Dad Food — Mom Called Me — John’s Debut — Outro
Repeat Prints
JWHMan Repeat #5New Hope For Argumentative Life
https://youtu.be/kj1EedLqXBI Back on the pod to discuss various topics including Saying My Age, A Conversation With My Brain, the Mortal Husk (Canto XIII of Dante’s Inferno), Falling, A Place For Us, By Us, the Argumentative Life, New Hope For Patients With MS and Other Neurological Dis...New Hope For Argumentative Life
Saying My Age — Conversation With My Brain — Mortal Husk (Canto XIII) — Fell Against The House — A Place For Us, By Us — Argumentative Life — New Hope For Patients With MS and Other Neurological Disorders — My Son’s Resolution
Shout outs
To Rocky, Sandman, Jersey Girl
A Place For Us, By Us
‘A Place for Us, By Us’: San Francisco’s Disability Cultural Center Breaks New Ground
KQED Story about a first-in-the-nation disability community center in San Francisco, featuring Deborah Kaplan, Alice Wong, and others.
New Hope
Crossing the blood-bra...
Animated Representation
The iconic line, “It’s alive! It’s alive!”
is spoken by Dr. Henry Frankenstein (played by Colin Clive) in the 1931 film Frankenstein. This famous line is actually an addition to Mary Shelley’s original novel, where the creator reacts with horror and flees from his creation.
Birthdays
Mom, Freddie Mercury, Gordon Harrison Hull
Put It On The List (House shows)
Polka band, Ghast,
Bard with lyre
we need a bard with a lyre to compose a theme song about foot wars that occur over the middle...
Ghost On Sabbatical
Is this thing on?
Seeing what still works.
This Week’s Selfie
Ghost On Sabbatical
Is this thing on? Seeing what still works. This Week’s Selfie
Cha
The Tamis
Boom (explosive) Everybody in the house say What's The Matter With Me? Podcast! Doesn't really roll exactly? In "The Tamis," we've started down a road and we aren't looking back behind us. The episode finds us rolling the chair around Berkeley, thinking molecular gastronomy and cooking while disabled. Shoutouts To The Sandman, Etan Rechra, Tall John and Rocky Cal Performances Scene Ladysmith Black Mambazo creeped out my wife The "Walker" fiasco Are Marshmallows Molecular Gastronomy? Turns out, they're like foam Burning Up I burnt my elbow on the BBQ again. I stumbled and my arm touched the lid. A Paucity...
Cooking
Whoomp! (Here It Is) Party on, party people: let me hear you touch the ground! In "Cooking," What's The Matter With Me? Podcast has all the pots on, the gas is burning and we're ready to go. This episode touches on cooking through limitations, self-imposed or otherwise (like a disability), with a trip to the military-industrial grocery store we know and love as Target, cooking @christinatosi with the kids and watching @majordomomedia food TV. Word From Sponsor Check Out Hoppin Hot Sauce On Amazon Shoutouts to Rocky Shopping List We're getting ingredients to make Rocky Road Sandwich Squares and some...
The UN-ghost REVEALED
In the Season 9 Premiere, "The UN-ghost REVEALED" I return from ghosting the podcast since last year! I'm back and older than before! Various topics, no theme, chaotic dishevelment, dishevelry. Respect Due Canadians Did you see the game? Shout outs to our Canadian listeners, especially long-running ones from Edmonton like Sean Wingrave, shout outs to the Edmonton Oilers Driving all morning Just to miss my physical therapy appointment Shout outs to Mary, Nathan, Butters and Tibby. Thanks for the card. Guy Roasts Mailboxes https://www.tiktok.com/@droofreed/video/7358852048214887688?lang=en The guy roasts mailboxes, and that's fine, right? Meaning, "The...
Territorial Expansion
Low Anxiety, Going Places In this episode, I give a shoutout to Kevin for Montana info, share insights from Andrew Pulrang's Disability Thinking, and discuss prepping Dax Pierson interview questions. I also talk about my kids' haircuts, our neighborhood, music, therapy, hospital visits, and my recent solo trips and poetry publications. Shout Outs Shout outs to Kevin. thanks for the info about Montana. Kevin does comic book reviews on his YouTube channel Under The Cowl Of MS. Disability Thinking Now reading Andrew Pulrang's Disability Thinking Substack. I've always been partial to the combination of disability with thinking, the guy's been...
Skibidi Toilet Is A Part Of History
In the latest "What's the Matter with Me?" podcast, John updates on his improved sleep with a sleep apnea device, newfound independence loading his wheelchair, upcoming Montana trip, and reflections on anxiety. He also mentions his kids' interest in the viral "Skibidi Toilet" videos. A Toilet For The Ages https://www.youtube.com/watch?v=KrlkXOxlvCk I asked my son about skibidi toilet, and he replied: It's gone viral.. in fifty years, look in the history books, and there'll be skibidi toilet. Skibidi Toilet is a part of history. A 10-year-old Shoutouts https://www.youtube.com/watch?v=M6QOrgMeuMI ...
War On Sleep Anxiety
Compulsive behavior sequences are keeping me up at night, precluding a good night's sleep I'm driven from bed, get dressed, go outside to calm down, and eventually get back in bed. Out-of-control thoughts about the various trauma I'm going through overwhelm me, and soon I'm driven from bed again. Searched up 'strategy to stop repetitive behavior compulsive' at 130am: Sleep anxiety is a feeling of stress or fear about going to sleep. Anxiety is the most common mental health disorder in the U.S. Research suggests that most people with mental health disorders like anxiety also have some form of...
Slogging Through
Getting through anxiety one day at a time, one step at a time, putting myself out there. Slogging through. In the news Paris Promised the Olympics Would Be Accessible. The Clock Is Ticking. Article: Paris Promised The Olympics Would Be Accessible The city, which put inclusivity at the center of its bid, has improved access for people with disabilities, but with the opening ceremony about 12 weeks away, obstacles remain. Slogging through Processing what's happening One of the hardest things about Multiple sclerosis is wrapping your head around it. being cool with the things that are happening to you in the...
Anxiety Medication Strategy Session
In "Anxiety Medication Strategy Session," changing opinions on music, bouts of anxiety, recent publication in Identity Theory and Disturb the Universe, family life changes, increased mobility, and resumption of some duties. Last Old Guy Or First New Guy? Recently, I read a tweet by flea, and I was forced to reconsider: https://twitter.com/flea333/status/1774601328502898936 https://youtu.be/QEgalcH_-b4?si=q7ZD6rdC4ZhfnwbY&t=1762 Pat Matheny on German jazz critics Pat Matheny was a jazz guitarist that my stepfather really admired. For that reason, in my youth I stayed away from it. In general, I mind it...
Publication Barbecue
Featuring updates on Hoppin Hot Sauce inventory, newly published writing, recuperation from surgery, the year's first barbecue, and a new family pet. Sandman Knows Kale Shout outs to the Sandman, who wrote in about kale and he knows more about kale than I ever will. He works with kale as a kaleologist. Extra Hot Shortage Buy Extra Hot Hoppin Hot Sauce from Amazon as we will be out of stock on Extra Hot in the near term, and once Amazon runs out, we're out. Publication Instant Noodles published my 50-word story "CYBERTRUCK DENTAL, S. DE R.L." The link to...
Surgery Publication Vacation
Period of Change Undergoing a period of change: I had surgery, I got published and I went on vacation. Plenty of new music reviews in this episode. A word What's The Matter With Me? Podcast is sponsored by Hoppin Hot Sauce. Order it on Amazon. JWH Live! Writings By John Winfield Hoppin is live, because my editor said I needed a writer's website. I think it's pretty nifty.. Selfie Edict Subscribers get the selfie for as long as we all live. It's a lifetime subscription Shout outs https://twitter.com/MarchandsPetRat/status/1779926937177358503 Shout outs to Marchandspetrat, hockey s-poster living with...
Drugged Out
In "Drugged Out," a short episode featuring wine delivery, toilet paper shortage and trigeminal neuralgia pain medication. Long Time Subscribers get the selfie for as long as we all shall live. It's a lifetime subscription Green fluid Cuts in my hands have been getting infected and filling with green goop In Our Cups We got the wine delivery, man, and the wine deliveryman was in his 20s, maybe his mid-20s, and he was really upset about global warming. "Things aren't l really pleasant anymore," he said. I felt for him. "I feel for you," I said Toilet Paper Shortage ...
Spring Concert
In "Spring Concert," an incidental return to Dry Marchuary, a chapbook's worth of poetry and the school's Spring Concert. From chaos comes order One way to enjoy Hoppin Hot Sauce is "On Pasta". In the midst of near-total chaos, small rituals ground us, nourishing both body and soul. "On Pasta" at HoppinHotSauce.com Shout outs Shout outs to schwabino kickin fatal aikido kung fu karate they bout to find your body you better ask somebody mymedia designer.com tell a friend to tell a friend about my media designer See for yourself Spring Concert Selfie My hair is long as...
I drove
In “I Drove,” getting reacquainted with driving, where did kale come from and borscht out the wazoo. Iconic trio At Breakfast is a great time to have Hoppin Hot Sauce. Just like the iconic trios of Larry, Curly, and Moe, or black, white, and grey, or even the Roman numerals I, II and III, eggs, English muffins and Hoppin Hot Sauce form an unforgettable trio that’s sure to become a favorite in your kitchen. Shout outs Shout out to Jersey Girl and Max LevelWe're going to broadcast a game show in MayI'll be the score No matter what Selfie Selfie...
Buying A Used Wheelchair
In "Buying A Used Wheelchair," breaking my wheelchair and buying a new one on Craigslist, more record shopping, cooking borscht and getting accepted for publication. Every week we order pizza from the place in town. On the day after, for lunch I eat cold pizza with Hoppin Hot Sauce on it.(Hoppin Hot Sauce jingle) Those who say don't know & who know don't say Buying a used wheelchair selfie Subscribers get the selfie and the show notes e mailed to them, and I don't know what they do with them Record shopping I went record shopping at Amoeba and it...
Swift Correction
In "Swift Correction," Taylor Swift wrote all the songs, hoping everything's okay, and a sprained knee. But first, I'm programming robots to do my bidding! I can feel it-- success is near at hand. Automaton I I spent all day working on an automation to send posts created on the Hoppin Hot Sauce blog out to the mailing list automatically. Automations help multiply my actions which is important so I can conserve energy and avoid fatigue that comes with MS. Hopefully, I can stay in better touch with the hot sauce audience. Automaton II Swift Correction selfie Previously, another automation...
Wheelchair Dig
In "Wheelchair Dig," a dinner party, shout outs and a family trip to the record store. Amidst discussions on music finds, including Eminem and Taylor Swift covers, touching on the disappearance of People's Park, radio's outreach to marginalized communities, and the place of 'inspirational' content in disability culture. Canvas for hot sauce We had our neighbors over for dinner last night and we made pulled pork sandwiches and coleslaw. The kind of thing just perfect for hot sauce. All-KFJC Shouts Shout out to the sandman who wrote in for a fresh fish recommendation in the South Bay. So I gave...
The Music Episode
In "The Music Episode:" "Let's Paint TV," Ludacris color story meme, and keeping the kids in their rooms by tuning in to Day Of Noise on KZSU. When life gives you shoes.. make shoeanade The new shoes that I got in the last episode are working out. They're made by a company called Drew I swear it's true Semi-transparent guitarist playing a record store "in store" gig with red paint scrawled all over its face This is the music episode Spicy Roasted Pistachio Nuts The Spicy Roasted Pistachios with Hoppin Hot Sauce Extra Hot came out but there was one...
New Shoes 2KXXIV
SEASON 8 EPISODE 4"NEW SHOES 2KXXIV" In “NEW SHOES 2KXXIV,” I get new shoes for the first time in years, piece together a classy color scheme of colors with gross-sounding names and austerity in the UK impacts people with disabilities. Through this episode, I invite you to join me in unraveling the complexities of this multifaceted experience. Hoppin Hot Sauce Toasted Pistachios 1 cup pistachios, 2 teaspoon whole cumin seed, 1 teaspoon aji-no-moto, 1 Tablespoon Hoppin Hot Sauce, salt, olive oil. Stir together and lay out on a baking sheet lined with a silicone or parchment baking sheet. Place in a 350 degree oven for 3 to 4 minu...
Arte Povera
In "Arte Povera," Aaron "Wheelz" Fotheringham hits the skatepark in his WCMX wheelchair, we learn how to pronounce 'arte povera' and MS plays third wheel. Shout out Shout out to Jersey Girl who wrote in to let me know she was a diggin' on the new theme song @aaronwheelz WCMX GETTIN' RAD https://www.youtube.com/watch?v=YEXsDdhgX-s Aaron "Wheelz" Fotheringham WCMX disabled extreme wheelchair at the skate park. Watching his videos blew my mind and made me proud Arte Povera Selfie Put the selfie in and remind listeners to subscribe When was the height of the sound effects...
Ancient Cattle Herders
In "Ancient Cattle Herders," scientists solve a genetic mystery about multiple sclerosis, Christina Applegate goes on the Emmys, and we read about how acceptance is key. Caused by people with horses Surely a big deal with far-reaching implications Scientists crack mystery of how MS gene spread 10th January 2024, 08:09 PSTShare By Philippa RoxbyHealth reporter An international team of scientists say they have unearthed the answer in the DNA of ancient teeth and bones. The genes which protected our ancestors from animal diseases now raise the risk of multiple sclerosis (MS). The researchers call their discovery "a quantum leap" in understanding the...
New Pie Cutter
Welcome to the Season 8 Premiere, "New Pie Cutter" In this episode, "New Pie Cutter" which is a kind of smorgasbord episode, we celebrate the new year, the new season, the new theme song. People get ready, the new episode is here and ready for liftoff. Shout outs s Shout out to the sandman Contact me on the contact form to get a shout out Maybe the best shout out you'll ever have, or that anyone'll ever have New Pie Cutter To avoid a repeat of this year's thanksgiving gorefest, I ordered a metal pie cutter on ebay, with a stainless...
Can You Eat Blood?
Welcome to "Can You Eat Blood?" the first episode after a break for a few weeks. I had trigeminal neuralgia face pain, so I took a a couple of weeks off. I think AI would say that these are bunch of unrelated thoughts. Shout-outs Shout out to the poet Joe Imwalle who called me to thank me for sending a link to his linktree while at the same time insinuating (correctly or not) that almost no one listens to my podcast. Joe played guitar in my high school band and now he's a published poet Shout out to Jeremiah Jahnson...
God Of Thunder
Welcome to What's The Matter With Me? Podcast Season 7. Episode 31, "God Of Thunder" The provided text seems to be a collection of various unrelated topics and updates, including shoutouts, a fundraiser for KFJC, an art acquisition by SFMOMA, the outcome of a baseball game, discussions about tucking in a t-shirt, an exploration of self-sufficiency, cooking, and conversations about toxic behavior with your son. ChatGPT Shout Outs Shoutouts to Rocky who dug the face tattoo idea Remember to use the drawer. Repeat: do not get a face tattoo, just a drawer full of scraps of paper with tattoo ideas written on...
What's Really Going On
In "What's Really Going On", John discusses the challenges he's been facing with his children, particularly their lack of cooperation He shares the stress and difficulty he experiences in trying to handle this situation, about the frustration of dealing with his son's behavior and the impact it has on their daily routines. He expresses his hope for a resolution and mentions that it's the 30th episode of his podcast this year. The episode discusses various topics, including John's family life, his children's behavior, his creative work with Hoppin Hot Sauce, and his experiences at a drum and bass show. Forming...
Multifaceted Discourse
In "Multifaceted Discourse" John discusses various topics and gives shout-outs. Here's a summary of the episode: The humorous and diverse "Multifaceted Discourse" delves into a smorgasbord of subjects, with the usual touch of self-deprecating charm. Being a jazz vocalist is a real thing We saw Kurt Elling & Charlie Hunter at Yoshi's, where they always have a great accessible seating setup It was cool to see a jazz vocalist headliner; they scat on every song Bow Down John dishes out shout-outs, paying homage to a variety of individuals, and even reflects on reaching a milestone 201st episode. Shout out to slartibartfast...
A Range Of Subjects
A Range Of Subjects We’re paid through the year In this podcast episode, John shares personal anecdotes, music interests, and his challenges due to multiple sclerosis. He discusses social experiences, urban planning, wheelchair tennis, and efforts to improve mobility. The episode offers insights into his life and diverse interests. My wife reminded me of the time I got nervous with her family and I said that jujubees give you "copious fecal matter" Music Rundown New adds: https://www.youtube.com/watch?v=iAI_0ncyo3M Gabor szabo bacchanal - 1969 psychedelic apocalypse world music guitar centric Dad gave it to me ...
Stream of Consciousness Narrative
Potty Mouth DJ Delving deeper into what AI says I already do, I present to you, "Stream Of Consciousness Narrative." The "What's The Matter With Me?" podcast is a stream-of-consciousness narrative where the host, John, shares updates and thoughts on various topics that are currently on his mind. In this episode, John talks about a range of subjects, including his recent visit to urgent care, his experience with physical limitations due to multiple sclerosis, and his creative work on fundraising ads for a local radio station. He also mentions listening to the "Iowa's Newsworthy Past" podcast, gives a shoutout to...
Last Day Of Summer At The Jelly Belly Factory
Welcome to "Last day of summer at the Jelly Belly factory" on What's The Matter With Me? Podcast. I asked my artificial intelligence tool what this episode was about, and it summarized it thusly: The main idea of this episode is a stream of consciousness narrative where you share updates on various topics, including your experiences visiting a Jelly Belly factory, your interest in music, your thoughts on different sayings and maxims, an accident where you hit your head and had to get staples, and some personal reflections and anecdotes. The episode covers a range of topics and thoughts that...
Iron Curtain
Welcome to "Iron Curtain," a trip behind the enemy lines of the mind, contrasting the styles of my current dentist, The Cat, with my last dentist, The Iron Curtain. Peel back the layers of flayed gum tissue and see! To give you a hand, I asked artificial intelligence to find the funniest part: It's challenging to pinpoint a single "funniest" part, as humor is often subjective and can vary based on individual preferences. However, there are several moments that include lighthearted anecdotes, witty observations, and amusing descriptions. For instance, John's description of his neighbor, the retired police officer, and his...