The Dementia Dialogues

Rachel John returns to dive deeper into the realities of unpaid caregiving. We explore why recognising yourself as a carer can be life-changing, what support is (and isn’t) out there, and the emotional toll of doing it all alone.

A must-listen for anyone supporting a loved one with dementia.

What does dignified, person-centred home care really look like? In this episode, Kate Pilkington from Riverpath Care shares how her team blend lived experience, clinical insight, and practical innovation to support both families and people living with dementia.   A must-listen for anyone navigating care decisions.

Michael Booth was diagnosed with young onset Alzheimer’s at 46 — just months after losing his mum to the same disease.

In this powerful conversation, he shares the raw reality of that diagnosis, how he’s reshaped his life with purpose, and the many ways he’s working to make dementia support better for everyone. A moving and motivating listen.

What if your parent was diagnosed with dementia in their 40s or 50s — and you were still at school? In this episode, Grania McKittrick from Lorenzo’s House shares how their global community is transforming support for families affected by young onset dementia.   Website link: https://www.lorenzoshouse.org

Beth Britton cared for her dad through 19 years of vascular dementia, starting at just 12 years old. Now an MBE-awarded advocate, she joins me to share her journey — from heartbreaking care experiences to creating real change.

We explore the Five Ways to Wellbeing, how small moments can make a big difference, and why personal experience should be at the heart of dementia education. A powerful episode for families, carers, and professionals alike.

What if life didn’t have to shrink after a dementia diagnosis? Ruth Thompson from Dementia Adventure shares how their supported holidays, carer training, and nature-based approach are helping families rediscover joy, confidence, and connection.   This uplifting episode is packed with practical insights and fresh hope.  

Find out more:

🌐 Website – dementiaadventure.org

📺 YouTube – youtube.com/@DementiaAdventure

📘 Facebook – facebook.com/dementiaadventure

At just 16, Will Dean’s world changed when his mum, Ronnie, was diagnosed with young onset dementia.   In this honest and emotional conversation, Will shares the reality of becoming a caregiver alongside his sister Lizzie, how they navigated a broken system, and how running became his escape and his voice.    A powerful reminder that young people are impacted too — and deserve to be heard.

What if the key to better dementia care was as simple as a blue chair? In this episode, Dr Kellyn Lee introduces Material Citizenship — an evidence-based approach that’s quietly revolutionising care.

From reducing distress to restoring purpose, everyday objects have the power to transform lives. It’s time we looked more closely at what it really means to live well with dementia.

A dementia diagnosis isn’t the end — just ask Pete Middleton. 

Living with dementia and more driven than ever, he’s on a mission to show others what’s possible. He invites anyone diagnosed to join him in shaping change via the Three Nations Dementia Working Group. 

This is a rallying cry you don’t want to miss!

In this episode, Dementia Coordinator Karen Truman reveals how Gibraltar is reimagining dementia care through training, community engagement, and compassionate support systems. Discover how small changes can make a big difference—wherever you are in the world.

What if the first signs of dementia looked more like mental health struggles? Beth Jones opens up about caring for her mum, Jill, after an early onset frontal temporal dementia diagnosis. This heartfelt episode explores missed signs, medical frustrations, and the emotional highs and lows of family caregiving.

What if you could see pain when someone can’t tell you they're hurting? Drew Hunt from PainChek shares how AI is transforming dementia care by helping caregivers detect and manage pain more effectively.   Find out more at www.painchek.com or follow @PainChek on social media.

Natalie sits down with her mum, Christine, for an honest conversation about her Advanced Care Plan. Together, they explore faith, family, care preferences, and the emotional side of planning ahead. A moving reminder that end-of-life planning is really about love, dignity, and peace of mind.

Caring for a loved one with dementia can feel overwhelming, but support is available. Admiral Nurse Mandy Cheyne shares expert advice on navigating dementia care, managing caregiver guilt and burnout, and making difficult decisions with confidence. Plus, find out how to access Dementia UK’s free helpline for one-to-one specialist support.  

Dementia UK Admiral Nurse Helpline: 0800 888 6678 (open 7 days a week) Book a free video or phone appointment with an Admiral Nurse: dementiauk.org/appointment

Caregiving isn’t just about helping—it’s about adapting, grieving, and finding resilience in the hardest moments. In this episode, therapist and caregiver Kelly Meany shares her personal journey caring for her mother with dementia, offering both lived experience and professional advice.   From navigating trauma and burnout to finding connection and support, Kelly’s insights are invaluable for caregivers and families.  

📲 Connect with Kelly on Instagram @thellieshow or via email at kelly@healingwithkelly.com.

What’s it like to navigate a parent’s dementia journey as an only child? June Harris shares her experience—from the challenges of diagnosis to the unbreakable bond she shared with her mother. A heartfelt conversation about love, loss, and the memories that remain.

Imagine a TV streaming service designed specifically for people living with dementia—where every show is calming, engaging, and supportive. Rosie Polya from My Life Films joins me to share how My Life TV is transforming entertainment for those with dementia and their caregivers. Plus, don’t miss out on the free trial to experience the benefits firsthand!

Caring for a loved one with dementia is an emotional and exhausting journey. Kate Curtis, The Carers Coach, shares her personal experience of caring for both her mum with dementia and her dad with Parkinson’s.   We discuss the rapid decline of her mum, the lack of support for unpaid carers, and why making early plans is crucial.   Find Kate on Instagram @katecurtis or search The Carers Coach.

Could childhood stress increase your risk of dementia? And could a simple hearing test help protect your brain? Dr. Sarah Bauermeister, associate professor of cognitive neuropsychology, joins me to explore the powerful links between stress, hearing, and dementia risk—plus practical steps to support lifelong brain health.

What if dementia revealed something beautiful about a loved one you never knew? Speech and Language Therapist Aisha Dalal shares expert tips for supporting communication, eating, and swallowing, while also reflecting on her grandad’s journey—including an unexpected discovery that brought them even closer. We talk about staying active, finding connection, and cherishing the small moments that matter most.

Join me and Caroline Southgate, physiotherapist and founder of Doris Jones Home Care, as we discuss mobility in the elderly, maintaining purpose, and the importance of planning care early. Caroline shares insights into frustrations in the care sector and practical advice for finding the right home care support.

When the roles reverse, how do you navigate becoming a parent to your own parents? Susan Seddon shares her journey of caring for both her mum and dad with dementia while balancing work, family, and the emotional weight of that responsibility. We explore the tough choices, the lack of caregiver support, and why she chose to become a full time carer over a care home.

Join us for an enlightening episode with Dr Becky Carlyle as we explore the groundbreaking research on cognitive resilience and the proteins that enhance it. Discover her biggest findings and the surprising impact on hearing aids on cognitive health. If you're curious about how to strengthen your mind, this conversation is a must-listen!

Join us for a conversation with neuroscientist Jane Lowe, founder of Ivy House, as we explore holisitc dementia care.

Discover what compassionate care looks like and the key factors that can transform the lives of those living with dementia.

This episode is a must-listen for anyone passionate about improving dementia care!

Sue Lloyd shares her heartfelt journey of caring for her parents, both diagnosed with dementia.

From navigating the healthcare system to the emotional toll of transitioning them to a care home, Sue highlights the challenges and frustrations of caregiving whilst also reflecting on the need for better support and training in dementia care.

Discover the incredible benefits of stepping outside, especially for those living with dementia. Join us as Debbie Carroll from Step Change shares powerful stories and surprising research findings that highlight how nature can uplift spirits and foster connections. 

Learn practical tips and inspiring insights that could transform your relationship with the great outdoors!

Dementia care requires understanding diverse cultural needs, but education is lacking on what it looks like. Caregiver Rachel John shares her personal insights on navigating these nuanced differences while caring for her mother, Francis.

Discover the bravery it takes to seek support and how it can empower both you and your loved one living with dementia.

In this episode, we sit down with Ryan Dixon, a dedicated facilitator transforming the lives of those living with dementia through music therapy.   Discover how music fosters social connections and enhances emotional memories, and hear incredible stories about the profound impact these sessions have on individuals in care homes.    Join us to explore the healing potential of music and the hope it brings to those affected by dementia.

Matthew Nugent, dedicated full-time caregiver for his mother, and I explore the challenges of dementia denial, the importance of seeking support and the profound effects of caregiving on mental health.

Don't miss this touching conversation that sheds light on the realities faced by caregivers.

Join us in todays episode as we chat with training officer Rhian Pitt about the transformative Effro project and the inspiring community groups making strides for those living with dementia. Discover the power of reminiscence therapy and the urgent call for a more inclusive environment that uplifts individuals with dementia.

Tune in for an enlightening conversation that could change lives.

Nicola Humphries, clinical services manager, addresses the critical gaps in support and communication faced by those diagnosed with dementia.

We explore the challenges of being seen as a disease rather than a person and the often-overlooked positives of living with dementia.

Amanda Bolt, Local Services Manager for Alzheimers Society talks about the transformative power of knowledge in dementia care. Discover the importance of personalised support, the challenges in early diagnosis in younger individuals, and the vital services available for those living with dementia and their caregivers. This conversation is packed with expert insights and practical advice that can make a real difference for families facing these challenges.

Jakkie Doolin shares her experiences as an activity coordinator and daughter of Bobby, who lives with dementia. We explore the stigma around moving loved ones into care homes and the emotional challenges families face. Don't miss these valuable insights that could change your perspective on dementia care.

Step into an inspiring conversation with Simon McDermott, son of the Pride of Britain award winner and YouTube star, Ted McDermott, also known as ‘The Song A Minute Man’. We delve into the realities of dementia diagnosis, the importance of recognising behavioural changes, and the vital support needed for those living with the condition. Discover how community connections and dignity play a crucial role in navigating this journey together.

Lets explore the documentary 'Human Forever' with humanitarian activist, Teun Toebes, uncovering how we can transform the way we treat individuals with dementia. Discover the power of community and small changes that can create monumental impact in their lives.

Tune in and learn how removing labels can lead to a more inclusive and compassionate world!

https://human-forever.com

https://article25foundation.com

instagram - @teuntoebes

Author of The Housemates - https://amzn.eu/d/6a7N0Mr

Join me as Bernie Layfield shares her heartfelt experiences navigating the challenges of caring for her father with dementia, following the loss of her mother to the disease. She offers invaluable insights and practical tips to help others find joy and resilience amidst the struggles. Tune in for an inspiring conversation about love, loss and cherishing every moment.

Join me in this episode as I share the wonderful inspiration behind this journey, my personal frustrations with the complexities of dementia, and my hopes for a brighter future. Tune in for insightful conversations that aim to educate, empower and foster understanding - because together, we can navigate this challenging path!